Confession #2 - ... well... never mind. That was enough confessing for a Monday.
Today was a really big day in Jackland. We've been hearing about this amazing doctor from Seattle Children's Hospital who comes to our state for a clinic (it's what happens when you live in a rural place). We finally got to see her this morning. Her specialty is rehabilitative medicine, basically an M.D. in physical therapy. She sees lots of preemies and kids like Jack (with cerebral palsy and other motor skill issues). I had literally heard about how awesome she was from five different doctors. She did not disappoint.
It is very refreshing being around a doctor who understands Jack's specific health concerns. She told us the answers to our questions, often before we even had to ask them! She was prepared, didn't "dumb" things down when talking with us, and was probably the most encouraging doctor we've ever spent time with. We left feeling on cloud nine.
Long story short, Jack is doing amazingly well for his rocky beginnings. For his grade of brain hemorrhages, his ability to walk so well is something to get excited about. Now, no one really needed to tell us this, because we know how much of a miracle it really is and how hard Jack has worked to get to this place. But to hear it. Oh that is pure icing on the cake!
I really wanted to spend some time talking about Jack's future, about what to expect. She thinks he will continue to improve in walking and movement. They have different categories for rating movement capabilities, and Jack scored very highly. She told us about cerebral palsy and how it is not a degenerative disease in that Jack won't get worse. It can only get better! How awesome is that to hear?! We learned about things we will need to watch out for (his left hip) and we finally got the confirmation that yes, Jack will be getting Botox in some of the tighter muscles of his left leg. I guess Botox was actually discovered first as a treatment for kids like Jack, long before it was used for cosmetic purposes. Botox is scheduled for late October, where Jack will be put under light anesthesia. Bring it on, I say!
Overall, a wonderful appointment.