Wednesday, December 21, 2011

Wordless Wednesday?

I'm letting yesterday's post sink in. It's not news to me, but telling the world is something that I've debated about internally. We don't want Jack treated any differently than before. We don't want pity or anything of the like. We just want understanding and a place to bring awareness to extreme prematurity. And your support. Always. That is what we need.

As someone on Facebook said - this diagnosis "doesn't change Jack, nor does it define him."

Amen.

So, almost a Wordless Wednesday post, without actually being wordless. I guess that's just how I roll.




P.S. Winter Wonderland here in Montana! Just in time.
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6 comments:

Angie said...

I have a friend who I recently reconnected with. Her son was diagnosed with something when he was almost a year old that pretty much in a medical term meant he would never walk, talk or thrive. COMPLETELY wrong. He's walking, running, talking and most definitely thriving. Do not let Jack's diagnosis get you down. He's already proved what he can do, and what he'll continue to do. And being the awesome parents that you are - he'll continue to make huge strides. Keep your head up. Merry Christmas!

Emily Real said...

Your continued authenticity brings greater understanding, definitely awareness, and I hope (like you said), just what you need. Hearing from your heart honestly is so refreshing for me and helps me know how to support and pray. So, though it takes risk on your part, I thank you, Jessi. Especially being further away, I can't talk to you often about it. I so appreciate your transparency, vulnerability, and again, authenticity (how many ways can I say it? Haha...) I love you and your precious family.

Emily Real said...

Oh yeah, BEAUTIFUL winter wonderland photo. Should be a Christmas card. <3

Sarah Pope said...

Love the beautiful snowy picture. Ive never been good at wordless Wednesday posts either! :)

Anonymous said...

I am a special education teacher and I spend my school days with kiddos who have been labeled. Those labels give me a framework or a reference point, but by no means define my kiddos. I have seen students with severe cognitive delays be able to read like champs. I have also seen children who were extremely premature rise above the struggles life handed to them and be happy, healthy learners. Jack seems to be a little miracle, and I think that in years to come he will continue to make great strides - not at the pace of a "typical" child - but at his pace. One of my favorite students ever was a fourth grade student born prematurely with spina bifida. He has two shunts, a bad heart, leg braces, and an eating disorder, as well as some learning disabilities. He also has a thirst for knowledge, a sweet personality and ready smile, and in fifth grade he went from reading at a first grade level, just barely, to reading at an end of third grade level. He was on his own pace. I was just glad that I got to be along for the ride and see his triumphs. Jack is a cutie, you have truly been blessed.

Carie said...

Gorgeous picture Jess. You have a gift, that's for sure! I love looking at the photo album of your life. It's beautiful for many reasons... Merry Christmas.