Tuesday, April 27, 2010

Quick Update

I haven't blogged in a month. It has been a super stressful time - when is it not stressful these days, you ask? I am trying to keep a positive outlook on Jack's health and I am pretty sure things are going to get better in the next few weeks.

We did exhaustive tests to rule out any underlying medical issue as to why Jack does not eat enough. We traveled back and forth to Billings, Bozeman, and Missoula for answers. He sometimes (on a good day) drinks about 20 oz. That is 10 less than he needs to gain weight. He is pretty good with eating solids and usually we get a tray or 2 in him a day. But this past month he started teething, and his left side is showing more and more signs of weakness, and sometimes it has felt like he is regressing with his bottling.

So we made the decision to go ahead and get a tummy feeding tube (G-tube). That surgery will probably take place next Tuesday.

It is such a relief to think that we finally will have a backup if Jack decides not to eat. It is hard to watch a baby loose weight. One Dr. even diagnosed him as "Failure to Thrive" after remarking "yeah, this baby is WAY too skinny." Like we didn't know that already!!!! I know that is a common medical term, but that is nothing you ever want to hear about your baby.

Let me say this about Jack - he is the happiest baby I have ever known and I am not just saying this because he is my own son. Both Jon and I are well aware of the huge medical problems Jack will encounter in his life. But I am not joking - Jack doesn't cry. He doesn't fuss much (only when tired) and will smile and laugh for hours and hours! When we are desperately trying to stick the bottle in his mouth and squirt a little formula in, he just gives us a HUGE smile and giggles... like he's saying "just you try and feed me!"

He doesn't seem to have the strength or "get" hunger or drinking from a bottle anymore. I know these are super common issues with 23 week preemies, especially preemies that had brain damage early on. But I never knew how hard it could be to get food in a belly! So I am praying that next week's surgery will go off without a hitch and Jack will start to get nutrition to grow again.

That's where we are at. I have thought a lot about blogging, but sometimes it can just be a downer of a post and who wants to read that? Once again though, your prayers and thoughts would be appreciated as we start this road of feeding therapy and hopefully, a growing boy.
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Julie said...

I love this picture and his cute little shirt. I'll continue to pray for Jack and you guys as you encounter new challenges as parents. What a blessing to have a happy boy, despite everthing. He really is Super Jack.

Chelsea and Cody said...

Jack, O how we love you. Thanks so much for the update. Jack will be in our prayers! We are thinking of you guys often.

Tami said...

What a gorgeous little guy!

Jessi, I know that Jack's eating issues has been a difficult road to travel. I hope that this decision will bring you some much needed stress relief and more quality time with Jack. I'm sure it will help his weight gain tremendously. As always, my prayers are with y'all. Let me know if you need anything!

babs said...

What a cutie! I love the picture. Thanks for posting. I know it is probably really hard, but I definitely like reading about your little guy. Sending lots and lots of positive energy to you and your family.

Blalock said...

Thanks for the update. Continuing to pray for you and for Jack. Praying that God continues to give you and the Dr's wisdom how to best help Jack. Love you.

Emily Real said...

He is such a beauty. Praying for you in all of this! Please let me know if you need anything!